May 17, 2012
11 days down....
11 days into the hospital stay.....11 days closer to him coming home! When I posted last week, his counts were still high enough that they said he could go outside for a walk. I thought it would be so nice for him to get outside and feel the sun.....not so much. He has to wear a plastic gown, a thick mask over his nose and mouth and latex gloves when he leaves his room. He was so hot and sweaty in all his gear. It was a pretty hot day, so we didn't stay out there for long. Wednesday night he got pretty sick, so they were giving him nausea medicine left and right trying to make him feel better and comfortable. He was pretty out of it Thrusday to Sunday due to chemo meds and nausea meds on a contiuious basis until Saturday. Sunday was his day of rest only getting fulids to keep him hydrated. Monday they put his stem cells back into him. It was quite the set up. There was a guy from the red cross that manned the container that the stem cells were froze in and the warming tray that he unthawed the cells in, there was a nurse at the iv pole maintaing the speed they were going into Josh to avoid him having a reaction and there was a nurse taking his vitals every 15 mintutes and making sure everything was being recorded into the computer. Josh was smelling and sucking on lemons and I chewed thru a package of gum and ate a couple of strawberry ring pops because the preseratives from the stem cells have a bad taste/smell. I have been told they smell like raw fish (mainly salmon), galic and cream corn. I don't think that it smells any thing like garlic and I apparently don't know what the other two smell like because I could say 'oh ya, thats what it smells like'. I can't exactly say that it smells like anything, it is just a very different, gross smell. Luckily it didn't stay around long. After the stem cell process it had just been maintaince fluids going into him to keep him hydrated since he hasn't been drinkng much. Along with the not drinking he hasn't been eating either. The said the most calories he has ate in 7 days is 800....not good. So they put him on tpn, which is a milky looking iv bag that gives him the vitamins, nutritional suppliments and calories that his body needs to make it though the recovery porcess. It may make his blood sugar level go through the roof so they are keeping a close eye on it and he will get insulin shots if need be. His blood counts are super low, which is the idea behind this whole process, but he is now needing infusions because theya re dipping under the low mark. Yesterday he had to get a bag of platelets, they will check him again later this afternoon to see if he will need some more.
So far, so good....I guess. Other than the horrible nausea and not drinking or eating, no major complications and it has gone pretty much like they told us it would. When he's awake, Josh spends his days in his room watching tv and playing on his phone or the ipad. We get out and walk at least once a day. That's about the extent of our fun, pretty boring :/ Once again, thanks so much from the bottom of our hearts to you all for the continuious thoughts and prayers, for the dinners and all the help with our kids. From such a horrile thing comes such greatness and for that we are so blessed!
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